“It has been fantastic for my family to be involved with the Gapp study. For generations we never knew exactly why we bleed and the study has provided us with the opportunity to look into this. We are very grateful for the work that has been done and thrilled to understand our platelet disorder in […]
About Janet Richards
Posts by Janet Richards:
We are delighted to receive a grant of £3000 from the TUUT Charitable Trust for our publications programme. This money will enable us to produce a series of fact sheet publications that we hope to have translated into the Welsh language.
We are delighted to introduce fact sheets on the most common platelet function disorders. See our Resource Library for these publications: Fact sheets The series of Factsheets provide an easily understood overview of the known forms of platelet function disorders for patients and family members. Information is available on all of the major forms of platelet […]
With many thanks to the family and friends of Viv John Beck, who sadly passed on 17th December 2015. He was a great man with a great heart and was extremely proud of his family. Thank you for the donations to help us help people with bleeding disorders.
Dr Neil Morgan and colleagues have identified a new gene called Schlafen-14 (SLFN14) which is defective in some patients with a low platelet count and a platelet function disorder. In this paper published in the Journal of Clinical Investigation the patients described have had many bleeding episodes requiring multiple treatments over the years. This discovery […]
Our thanks to Dr Marloes Tijssen and her colleagues at All Saints Church in Newmarket on Saturday 5th September for a fundraising evening of wine, cheese and musical entertainment. The evening raised £500 for platelet research. Thank you!
THE HENLEY CLASSIC is a 2.1 km endurance upstream River Thames swimming event, held over the Henley Royal Regatta course, very early on the Sunday morning before the Wednesday start of Henley Royal Regatta. 153 19 Rob Evans 00:39:06